2026 U.S. NATIONAL SEVERE VWD CONFERENCE
June 19–22, 2026

Click the cover image to access the full conference agenda booklet

VWD Connect Foundation proudly hosted its Tenth (can you believe it?) Annual National Severe Von Willebrand Disease Patient Conference in West Palm Beach, FL, June 19-22, 2026. This year is a special time of celebration: not only is it our 10th conference, but it is also the 100th anniversary of the first mention of von Willebrand disease in literature.
As a special treat for our Members this year, we hosted Member Appreciation Day on Friday, June 19. Members and their guests were welcome to arrive on Thursday, June 18 and spend Friday renewing friendships, meeting new friends and sharing stories. 

Two different educational tracks were hosted on Saturday morning: The “Core Education” track is designed for first-time attendees, or any attendee who would like a refresher on basic information about genetics, symptoms and management of sVWD.  For those attendees who like to dive a little deeper into focused areas, we offered the “Specialized Topics” track.

There were also many diverse breakout sessions, our small discussion groups with Faculty Members, to choose from throughout the Conference. 

To read more about the 2026 Patient Conference and see pictures of the event, check out our July 2026 newsletter.

Please click on the images below to visit our sponsors’ websites

Thank you to our Conference sponsors Alnylam, CSL Behring, Genentech, Star Therapeutics and Takeda for their generous support.

Thank you to our Innovation Fair sponsors Hemab and Microhealth for their support.