MEMBERSHIP INFORMATION
Registration as a member is essential, and we’ve made it easy.
Determine your ELIGIBILITY
✔ A diagnosis of Type 3 von Willebrand disease (requires medical documentation of diagnosis) OR
✔ Diagnosis of von Willebrand disease (excluding acquired VWD) WITH
Any VWF antigen* or activity** <20% regardless of bleeding phenotype/symptoms (requires medical documentation) OR
VWF antigen* or activity** <30% WITH excessive bleeding symptoms (requires medical documentation AND verification from a hematologist attesting to excessive bleeding symptoms)
*May show up on labs as: VWF:Ag
** May show up on labs as: VWF:RCo or VWF:GPIbm
✔ A parent/legal guardian of a minor patient (under the age of 18 years old) may join the Foundation on behalf of their child.
✔ Membership is open internationally, however some travel grant opportunities and in-person events may be restricted to U.S. residents.
Member CONFLICT OF INTEREST POLICY
One of the most important goals the Foundation has is to provide a safe, protected place for patients to share their stories and experiences free from any commercial interest.
To create that space, the Foundation has a Member Conflict of Interest Policy. This Policy is reviewed annually by Board Members and open to patient Members for comments and discussion. All Members must agree to abide by this policy. Please click the button below for our current policy, effective February 1, 2026.
If you’re ready to become a member, or have any membership questions,
please contact Executive Director Jeanette Cesta at 561-373-3889 or click below.
Alternatively, use the information request form and we will be in touch with you soon!